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| Meet
Roxanne B. who had been living in a community placement
and experienced some difficulties.
Northeast Center for Special Care worked with New
York State Department of Health Home and Community Based
Medicaid Waiver for Individuals with Traumatic Brain
Injury, Regional Resource Development Specialist (RRDS) to Help
Roxanne so that she could return to the community and be
successful.
Here
is Roxanne’s story in her own words:
I
was born and raised in Albany, NY.
I came from Albany to Northeast Center.
I was living in an apartment through the TBI Waiver
and I had some problems where I lived.
That’s when I came to the Northeast Center for
Special Care where I have been until I rehabilitated
myself. Barbara,
who is the RRDS and a lady I worked with on the Waiver
helped me come here.
I
had my brain injury when lived in Utica, NY and one day I
fell back on the couch and my hand kept hitting the TV –
I never knew what a seizure was.
I realized that I had wet myself and when I tried
to get up something exploded in my head and I was in the
house for two or three days before somebody actually came
and kicked the door down.
The people were so close but they sounded so far
away. There
was nothing I could do about it until the door came down
and I could only say that I’m in here.
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“Cindy
Pope helped me a lot.”
-
Roxanne B |
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When I
went to the hospital they told me that I had an aneurysm.
I was in the hospital for two to three months.
I had surgery done on my brain.
After the hospital I came back to Albany and I had met a
lot of people at the Doctor’s office and someone recommended the
TBI Waiver Program to me and that’s how I learned about it.
I was on the Waiver program for about a year before coming
to Northeast Center for Special Care.
When
Barbara talked to me about coming here I knew that somewhere down
the line it would only be for the better - for the better of myself.
When I first came here I really had a bad attitude, you
know like I didn’t want to talk to anybody.
I just wanted to be here, get out, and go back home but I
learned a lot while I was here. I learned how to control my anger, how to maintain myself and
also how to take care of myself.
I
talked to a lot of people here like when I got angry or about
little minor things. Some
of those are sicker than others here and little things used to
bother me. I
couldn’t hit people because that would not be the right thing to
do. I knew if I had
hit someone I would be in more trouble than when I first came
here. So I started
going to groups, talking to different people, going to activities
and doing different things with my time.
I got good help from Erin Kramer (Social Worker), Michelle
Harradine (Community Reentry Specialist) and Miss Cindy Pope
(Nurse Manager). Someone
else who really helped me here is Victor Zelek (Psychologist).
Victor played a big part in my life because he was somebody
that took the time to look at things with me more than just one
way. He taught me
that you can look at a picture and turn it around, and rearrange
things. That taught me a lot about my attitude. It was really bad when I came here but now I’m sure
that I got the message.
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“We
have choices and it’s better that you choose to do it because
when you get back to the community, you’re living for
yourself.”
-
Roxanne B.
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One
group I got a lot out of is the Intensive Community Readiness
Group. They do a lot
of different things in that group like self-advocacy, leisure
education, OT. This
helped me deal with a lot of different behaviors – more than
just one way. Tracy,
my OT helped a lot. She
was more than just a friend she was somebody I could tell
everything to – I mean there was no secrets.
Even if it was bad I knew I could talk to her. In
self-advocacy I learned that I could speak for myself.
I learned how to read better, of course we wrote a lot.
I learned how to spell better and I wasn’t too ashamed to ask.
When I got my Diploma from the Intensive Community
Readiness Group, I really felt happy. I felt in my life there was
something that I completed. There have been a lot of things in my life that I never got
to but I was really proud of myself when I completed that group.
My
favorite thing at Northeast Center was helping people.
I got to meet a lot of people here.
I became good friends with one Neighbor and every day I
would go visit her and taker her out to the patio.
I am
going to be discharged in May (of 2005).
I am going to live in an apartment in a different area than
before and I am going to be away from the kind of people that
caused me problems. The
area is clean and quiet. I
can walk out of my apartment and I don’t have to worry about
being in an environment that could get me into trouble.
I am going to go to a day program.
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“When
I got my Diploma from the Intensive Community Readiness Group, I
really felt happy, I felt in my life there was something that I
completed.
There have been a lot of things in my life that I never got
to but I was really proud of myself when I completed that
group.” -
Roxanne B.
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If I
could say anything to people who come to Northeast Center is that
you can do it if you really want to. First things first is that you got to pay attention and part
of paying attention is listening.
When we listen sometimes we hear things that we don’t
want to hear but in the end it’s all for the better because its
things that we need to know.
We have choices and it’s better that you choose to do it
because when you get back to the community, you’re living for
yourself.
Cindy
Pope remembers:
Roxanne
was a totally different person when she left then when she first
came to us. She
learned how to better relate to other people.
Her turning point was when she participated in the
Intensive Community Readiness Program.
After being in that program for some time, when she was
faced with challenges in relating to others. Her reactions to
those situations were something that she thought she would never
be able to do – walk away and not get caught up in a negative
response. She
leaves with a great attitude and an understanding that she can
accomplish her goals.
Tracy
Gravitz, Occupational Therapist spoke about her work with Roxanne:
Roxanne
attended our Intensive Community Readiness Program at Northeast
Center. The
program was designed to help people to hone skills and ability in
the community and to recognize awareness of barriers that were a
result of their injury. And
most importantly for people to see things in themselves that they
learn they need to address and to set personal goals.
We have an emphasis on note taking and developing
organizational skills. Roxanne
did well in this program. First
her attendance was excellent and she was a good participant.
Roxanne was also helpful to other peers – she was a
lovely person, she cared for other people a lot.
I
believe the turning point for Roxanne was her self-discovery in
this program. She got
a good understanding of why she had had problems.
What she learned and what she told us was that she knows
that she has to put herself first and work on getting herself
better so she can make it back in the community.
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Roxanne
with members of her Team Cindy Pope, LPN, Nurse Manager, Michelle
Harradine, CBIS, Community Reentry Specialist and Erin Kramer, LMSW,
Social Worker
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Sometimes
people with brain injury have problems even after they have been
living in the community. Northeast
Center for Special Care provides many services but it is also a
special program where people who are having difficulty can come and work through issues and
go back and resume living in the community.
That is why we work closely with the New York State
Department of Health Home and Community Based Medicaid Waiver for
Individuals with Traumatic Brain Injury.
Rehabilitation, Recover and Reentry is an
important part of our mission.
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Northeast
Center for Special Care
QUICK FACTS:
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- OT:
Occupational Therapy.
- TBI
Waiver program: New
York State Department of Health Home and Community Based
Services Medicaid Waiver for Individuals with Traumatic
Brain Injury.
- RRDS: Regional Resource Development Specialist
supervises the TBI Waiver in an assigned region of New
York State.
- Intensive Community Readiness Program: A program at
Northeast Center for Special Care that works intensively
with individuals with brain injury with the goal of
developing skills that are transferable when they return
to the community.
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