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Releasing
a CD of Original Client Music to the Public as an Aspect of Brain
Injury Treatment: A Contemporary Music Therapy Perspective
(Download this article in PDF)
Music
therapy is an important part of the specialty rehabilitation programs
at Northeast Center for Special Care, It is not, however,
merely a recreational activity. There is growing evidence and
research which demonstrates that music is a valuable therapy when used in the rehabilitation of traumatic brain
injury and other medically complex conditions. Music is also a
significant in how some survivors come to re-define themselves
post-injury.
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With
Resident-Neighbors at Northeast Center developing their musical talents as a part of their rehabilitation
programs and the more that individuals engage in music creation
with peers - a natural outgrowth was the creation of a CD with
compositions and performances by Resident-Neighbors.
Together We Dream, Together We Heal, is the
result of that creative work. A CD with ten originally
composed songs performed by Resident-Neighbors.
We invite you to first listen to four song samples and then
read the accompanying article below.
Simply click-on any of the tracks listed below to listen on
Windows Media Player, Real Player, QuickTime, Winamp or other
players.
(Click
album cover to view a larger image) |
Releasing a CD of Original Client Music to the Public as an Aspect of Brain Injury Treatment: A Contemporary Music Therapy Perspective
Introduction
In
modern times, the CD has taken its place as the primary music ‘product’
in a multi-billion dollar entertainment industry but the belief that
music is basically entertainment to be enjoyed separately from more
serious pursuits of life is a relatively recent concept. For most of
human history, music was essential to the communication and sense of
connection within a tribe or village. Everyone participated in music
that was deeply integrated into the rituals, ceremonies, and
celebrations that related to the deepest needs of the community.
Although this view of music has largely disappeared from industrial
society, it is not entirely gone from the face of the Earth as the
following story illustrates:
Felipe
Herrara, a Chilean bank president, tells of a tiny Indian
village he’d visited on a feasibility study for a proposed
hydroelectric dam. Since the village lacked virtually every
modern development, Herrara asked the local chiefs what
project the bank could fund as a gift in gratitude for their
hospitality and assistance. After some deliberation, the
chiefs concluded, ‘We need new instruments.’ The
astonished bank president replied, ‘Maybe you don’t
understand. We would like to help you with improvements like
electricity, running water, sewers, telephones.’ But the
chiefs had understood the offer. ‘In our village,’ it
was explained, ‘everyone plays music. After we gather to
make music together, we can talk about problems in our
community and how to resolve them. But our instruments are
old and falling apart. Without music, so will we’
(Weisman, 1995).
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The
dominant perception of music as a form of entertainment, produced by
professionals for the purposes of leisure, diversion and relaxation,
permeates our society right through to our health and rehabilitation
institutions. According to Anthony Salerno, founder of the Northeast
Center for Special Care, a long-term rehabilitation center
specializing in individuals with traumatic brain and spinal cord
injury, neurological disorders and ventilator dependency (personal
communication, 2007):
The
fact is, the vast majority of people who work in our
profession, not to mention the Resident-Neighbors, families,
advocates, regulators, policy makers, legislators, elected
and appointed officials, and the community at large - too
often think of music therapy as only a recreational activity
and they regard recreational activity as a method of
Residents keeping occupied. The fact that this belief is
endemic is disturbing, but factual.
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Note:
At Northeast Center for Special Care, the individuals served are
known as the “Resident-Neighbors.”
Neurology
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"We
play music. Music makes us feel good." |
We
play music. Music makes us feel good. As such, it
appears inconsistent with the principles of serious work. In truth,
the effects of music are multi-dimensional, including physiological.
Some of these are of particular relevance to those recovering from a
brain injury. Negative affect states such as depression, boredom,
loneliness and worthlessness have been reported to be the most
common post-injury emotional reactions (Gagnon, 2006) and positive
self-esteem has been identified as a primary predictor of
psychosocial readjustment (Tate and Broe, 1999). Music has been
shown to increase dopamine levels that current neuropsychological
theories associate with positive affect and feelings of well-being (Menon
& Levitin, 2005).
An ever-increasing body of literature indicates a strong and
consistent pattern of activity throughout the brain enabling
creativity associated with music. Dr. Charles Limb of Johns Hopkins
University School of Medicine, quoted in an article in Medical News
Today (2008) said, “It is almost as if the brain ramps up its
sensimotor processing in order to be in a creative state.”
Research is uncovering the fact that music is a “whole brain”
phenomenon. Music researcher, Daniel Levitan (2006), relates that
music listening, performance and composition engage nearly every
area of the brain that has so far been identified, and involves
nearly every neural subsystem.
Neuro-researchers have discovered that the brain’s capacity for
reorganization following trauma, called neuroplasticity, vastly
exceeds what was once thought. This suggests to Levitin, “that
regional specificity may be temporary as the processing centers for
important mental functions actually move to other regions after
brain damage” (p.87). And, a major study recently sponsored by the
Dana Arts and Cognition Consortium (2008) concluded that an interest
in performing arts generates high states of motivation that lead to
improvement in other domains of cognition.
Process
Once
a client becomes motivated and confident enough to engage in the
process, the various stages involved in songwriting and recording -
deciding on the content of the lyrics, the emotional quality and
style of the music, the group effort involved in its performance -
all challenge and strengthen vital personal and community skills
essential to community reintegration following brain injury, such
as:
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Managing
relationships and effective collaboration;
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Self-organization;
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Handling
difficult feelings such as frustration, competition,
insecurity;
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Expressing
one’s ideas within an artistic form;
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Maintaining
concentration; and
-
Executive
function.
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Generating
the musical work, playing it publicly, even potentially marketing
the ‘product,’ is approached from a community arts therapy
model, described by music therapist, Dr. Kenneth Aigen (2005), as a
holistic understanding of the arts that leads people both inward in
exploration of their inner lives as well as outward towards
participation and connection within community. Such a framework
supports a value system stemming from principles of therapy as
opposed to those of the music business, for example:
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Validating
and celebrating personal progress, rather than the
generation of product;
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Remaining
sensitive to personal dignity and privacy issues
regarding how a Resident-Neighbor is presented to the
public;
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Helping
Resident-Neighbors cope with feelings related to the
public’s response; and
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Developing
an ethical plan of how generated revenues, if any, are
distributed.
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The
aim in this approach, according to music therapist, Gary Ansdell
(2002), is to assist clients in accessing a variety of situations
and to accompany them as they move between traditional therapy
approaches and the wider social contexts typically involved in music
making.
Songs
reflect and reveal areas of conflict or concern. In the process of
composing, performing or listening to songs, they transform feelings
of inadequacy and isolation into joyously shared communication. The
“Blues” idiom is an example of this seeming paradox in action.
Playing and hearing “the Blues” - by definition songs about
depression - makes people feel good. As a result of this archetypal
aspect of songs, the majority of songs, even those on the pop
charts, express feelings related to loss, frustration, or anguish.
Songs help people manage difficult feelings by:
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Giving
form to and enhancing emotional expression;
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Safely
containing disturbing or opposing emotions and
ambivalence;
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Validating
inner experience and ability to communicate with the
outside world;
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Stimulating
emotional identification and self-awareness; and
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Facilitating
group identification and cohesion (Soshensky, 2007).
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Speechless
- A Case Example
George P. was admitted to Northeast Center for Special Care for
rehabilitation following acute medical complications affecting
multiple organs, including his brain, which ultimately led to a
stroke. Additionally, George was found to have a heart defect that
necessitated surgery. Prior to his stroke at age 46, George had been
a healthy, single man who was employed full-time doing computer
work. He was also an accomplished piano player and singer who played
professional engagements and had aspirations for furthering his
career as a musician. His musical interests leaned towards jazz and
classical and he told me that he sang “like Pavarati.”
At the time of his admission to Northeast Center, George was
wheelchair-dependant with severe impairments involving speech, fine
and gross motor skills including the use of his hands, and other
complications. Emotionally, George was struggling with adjustment
issues related to his condition including depression with
significant bouts of anger, frustration and sleep difficulty. George
dabbled in some music sessions however, he was embarrassed by his
slurred, labored voice and typically laughed self-mockingly after
any efforts at singing. His piano playing was even less functional
and he refused to make any serious attempts. George shortly had to
endure further medical complications and surgery, returning to the
Center in extremely debilitated condition.
As George slowly regained his strength, he did not want to attend
the music program; however, music therapist Peter Bass and I
maintained our relationship and continued to encourage George to
resume some form of music therapy. As we continued to discuss the
matter, George made it clear that he did not wish to take part in
group sessions, saying he felt uncomfortable participating with
those less musically accomplished than him. That there were, in
fact, quite a number of highly talented musicians participating in
the program seemed to make no difference to him. George was
interested in being musical again, in fact he began to self-advocate
for it, but he would accept only an individual session.
I was able to arrange a weekly co-treatment session with his
Occupational Therapist. The original idea was that we would work on
some adaptive techniques for George’s piano playing. There is
evidence pointing to music, as a rhythmically coherent experience of
time and space, facilitating improved sensorimotor control, motor
programming and goal directed movement (Hurt, 1998, Dileo, 2005,
Aldridge, 2006). We began jamming in an exploratory fashion, with
George on piano, usually myself on bass guitar, George’s OT
helping with his physical positioning and sometimes, another client
on congas to provide a rhythmic foundation.
Although there was some progress in George’s fine motor control
and piano playing, it did not appear significant enough to be
sufficiently satisfying or motivating for him. However, his
musicality was soon engaged in a more comprehensive manner as George
began to compose a chord pattern to accompany his improvisations. It
was primarily based on a minor blues progression however it
contained several “jazzy” changes that George said were
influenced by John Coltrane. The fact that music helps patients cope
with the emotional stress caused by sudden severe neurological
illness has been borne out by research (Groch, 2008) and I felt the
scope of our work was expanding to include psychosocial goals that,
to me, are virtually implicit in all music therapy. I suggested to
George that he might want to consider composing a complete song
including lyrics. George hit on the central idea of “Speechless”
almost immediately, referring to his difficulty with communicating
clearly. The first verse of “Speechless” came very quickly to
George and was finished within one session:
Speechless
I’m speechless I know what I want to say but the words get
in the way And it ain’t no joke when all your words get
choked Speechless.
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The
next verse took a few more weeks. I was in favor of the song taking
a wider view of George’s feelings regarding his situation but
George remained adamant that the song was only about his being “Speechless”
and needed to remain focused on that. George’s strength of
character came through as he held fast to his artistic vision,
disregarding and overriding numerous suggestions and ideas by me and
his occupational therapist until he arrived at a second verse that
satisfied him:
Restless
I’m so restless All my thoughts and feelings are still
there I just can’t get them in the air And I need to
reveal what I’m forced to conceal.
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The
final section was pure George inspiration. He liked my suggestion
that perhaps the song could use a middle section and he spent a
brief time in the creative writing program arriving at:
When
Moses talked to God He said, speaking for me is hard God
said, don’t worry about it Your brother will speak for
you.
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Musically,
this bridge was applied to a standard blues middle section beginning
on the subdominant chord and resolving on the dominant. But if the
music of the bridge was rather traditional, it was nonetheless
effective as the power and profundity of George’s lyric gave the
piece a quantum leap into the mythopoeic. George was, of course,
referring to the Biblical quotations from “Exodus:”
“And
Moses said unto the Lord, O my Lord, I am not eloquent;
neither heretofore, nor since thou hast spoken unto thy
servant but I am slow of speech and slow of tongue.” “And
the Lord said…thy brother Aaron will be thy prophet.”
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In
discussing his imagery, George said that Moses had been one of his
major heroes even prior to his stroke. The fact that Moses was
someone who, like George, was considered to have had a speech
impediment and yet became known as the greatest prophet of all time
signified to George that his disability did not preclude his ability
to do important work. George believed he had a purpose yet to be
revealed.
When George’s song was finished, he wanted it to be recorded. This
necessitated moving out of the individual session format and into a
wider community context. Peter and I thought it would be a profound
statement for George to challenge the content of the lyric by
singing his own song but he refused. He insisted that it would sound
“horrible” and no argument about how the therapy involved in
singing it himself outweighed conventional aesthetic considerations
could change his mind. George’s choice of vocalist for the song -
his “Aaron” - was Adam, another resident and recovering TBI
survivor and fellow jazz and blues lover. Adam was emerging as a
stunningly talented singer although he had never known this about
himself and had virtually never sung prior to coming to Northeast
Center. A group of resident-musicians assembled to begin working on
the song with George as musical director. As the rehearsal started
to take shape and then transition into a recording session, the
energy and ambiance generated by the music of this little group
caught the attention of the Center’s Public Relations Director.
She wanted to take a picture to document the session but George
disallowed it. He wanted no pictures of himself. Although George’s
song explored a wide-ranging coping response to his current life
crisis, some of his real-life emotional conflicts related to his
trauma were clarified. A talented singer, he refused to sing
(although we were able to encourage him to provide a little backing
vocal part) and a proud and handsome man, he refused to be
photographed. Nevertheless, the recording of his song proceeded well
and George was extremely pleased with the results.
With the success of his musical vision behind him, George seemed
happier and more comfortable with himself. We began to discuss the
possibility of filming a music video to accompany his song. At
first, George said no, until he had an idea for an image that
appealed to him - throwing a rod down on the ground and having it
turn into a snake, as Charlton Heston did playing Moses in “The
Ten Commandments.” We considered this possibility but realized it
did not seem realistic to bring a snake into the Center. However,
George remained interested in the project, developing cinematic
ideas and allowing himself to be filmed, something he would not
permit less than a month previously. George donned a makeshift Moses
costume for the shoot and later said that he felt honored having the
opportunity to play Moses. He said he felt as if he connected with
the spirit of Moses during the filming, who represented to him
perseverance as well as accepting the loss of royalty to achieve a
higher purpose. George said, “Moses was someone who was willing to
walk through the desert until he couldn’t walk anymore and like
Moses, I will fight to the very end.”
As George began to make plans for his upcoming discharge, it was
apparent that his self-esteem, self-acceptance and sense of
empowerment were improving. He became willing to attend open group
music sessions and he sang “Speechless” and other songs publicly
in groups and performance situations within the Center on multiple
occasions. Historically, some music therapists have argued that
therapy requires privacy and is about process, not product. However,
music therapist Gary Ansdell (2005) has countered that performance
within a music therapy context can keep the focus on process while
also balancing individual and communal needs. In his live
performances, CD recording and video-making process, George came to
express pride in himself and his accomplishments rather than simply
self-derision as he had done earlier in his treatment. To paraphrase
social therapist Fred Newman (in Holzman, 1999, p.129), people can
learn to perform beyond themselves. They break out of habits and
discover, not who they were, but who they were not. Although
performance in healthcare must never be a requirement or an
expectation, carefully considered, it can function as an epiphany of
sorts that reflects, not where we are, but where we can go.
In preparing to return to community life, George would certainly
require some special services and he reflected on his future and the
changes he’d been through. Formerly a self-described arrogant,
independent person, he accepted people taking care of him more then
he allowed before. “The World is my brother,” he proclaimed. “I’m
more humble and pious than I was before. It’s OK that I need help.
I’ve made some peace with what has happened to me and an important
part of this healing came from being taken seriously as an artist. I
wasn’t ready to sing on “Speechless,” but I do hope to get
back to my singing. I want to sing in local opera, maybe even The
Metropolitan. I want to be the first wheelchair impresario!” “Well,”
I said, “that would be about as far away from being speechless as
one could go.” And George just laughed.
Community
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"Neuro-researchers have discovered that the brain’s capacity for
reorganization following trauma, called neuroplasticity, vastly
exceeds what was once thought." |
The fact that music is so identified with the entertainment
industry means that, in writing and recording original songs, the
client is doing something that’s culturally idealized. In this
way, as music therapist David Ramsey (quoted in Aigen, 2005) points
out, the perception of being an invalid can be almost instantly
transformed.
If a friend, family member, visitor, caregiver, or peer hears you
singing or playing on a CD, doing something they may think only ‘stars’
do, something they might think they couldn’t do, that person may
also think of you differently. It expands the context of your
relationships, of your self-perception and of your community’s
perception. Your talent differentiates and also connects you to the
community.
Beyond their influence within a healthcare system, CD’s circulate
in the general public. Their function is to share music with
strangers throughout the world, creating an opportunity for people
from all walks of life to experience people’s musical talents. The
artist’s musical talent, the artist as musician, becomes the
persona, and that persona is not defined by injury or disability,
but by the music they create - music to which all people can relate.
The fact that the performer may have a disabling injury becomes
irrelevant to the experience of the music. This is the value in
challenging people, not just to make music, but to transcend
limitations by becoming musicians, musical artists.
In this context, contemporary brain injury rehabilitation
methodologies stress the principle of ‘inclusion,’ meaning the
individual is incorporated into the community, irrespective of
actual or perceived disability. This is differentiated from the idea
that people need to be alike, ‘fit in,’ or reach for similar
standards; in the contemporary music business, to be “commercial.”
According to Condeluci & McMorrow (2004):
Inclusion
brings people to the community regardless of their
differences. It does not try to change or alter differences
against a person’s will or capacity. It does not try to
create forced similarity. Inclusion suggests that people
join in as they are. Inclusion respects differences, honors
diversity, and invites full community participation. It is a
term that implies a welcome to all (p.24).
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As
the internet and the availability of technology begins to whittle
away at the mainstream music industry’s control of product,
through the easy accessibility of cheap or free music, and of all
kinds of homemade and idiosyncratic music, the global music
community is becoming more ‘inclusive.’ Writer, Melvyn Bragg
(2007) quotes artist, Yinka Shonibare commenting on the role of “disabled”
individuals in the arts as “the last remaining avant-garde
movement.” Bragg also refers to Ju Gosling, artist in residence at
the National Disability Arts Collection, who points out that such
work helps people to understand that we can only really be happy
when we accept the reality of the human condition as being
vulnerable and imperfect.
Conclusion
In participating in musical activity that has been restored to a
context more worthy of its essence, we are all renewed. Music
therapist, Alan Turry (2005) has discussed the healing journey of a
(previously non-musician) woman named Maria who, upon being
diagnosed with a serious form of cancer, chose to write songs in
music therapy and, ultimately, to record and release them. In the
liner notes of her self-released CD, writer, poet, musician, Gary
Keenan (2002) wrote the following:
This
is soul music of the highest order. The songs are acts of
witness to the ordeal of living…All of them express a
transformation of the soul, from passive victim to creative
artist, and of the body from sickness to health. Her
discovery of her true voice is recounted in these songs, and
their real power is not that they portray a personal
confession but that they enact a fundamental spiritual
process. In order to be whole, each of us must find our true
voice, whether we are singers, poets, accountants or bus
drivers. By so boldly stepping forth in an act of faith,
Maria not only changes herself but is the agent of change in
her audience. She has chosen to face death singing her
particular duende, the flamenco singer’s fierce
devotion to life in spite of loss - and by doing so
transcends the fear that silences too many of us daily.
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As our
clients discover for themselves, as they re-create themselves in
fact through their creative music-making efforts, our musical
community - a community that embraces all, gives up on no one,
excludes no one, and with it, the songs on a public release CD -
cannot be considered merely entertainment. Nor do they strictly
represent a form of treatment, although they are, in some sense,
both of those things. But, really, the songs bear witness to the
faith, the optimism, and the indominability of the human spirit in,
seemingly, the most afflicted and traumatized among us. Dr. Kenneth
Aigen (1991) writes: “All creative acts have as their archetype
the creation of the world and our presence in it. Very simply, then,
to embrace creation, and hence creative activity, is to embrace life”
(p.94). In this courage, our Resident-Neighbors have much to teach
us. Again, in the words of Anthony Salerno, founder of the Northeast
Center for Special Care (personal communication, 2007):
Artists
recreate reality for themselves, and for us; they reinvent
their world, our world, the world. They redeploy reality.
Artists rediscover reality in their own way, on their own
terms, and then they let us in. When they do this, they have
awesome power, the power to reshape, to transform, to
express, to convey their reality. At its best, this is a
discovery for the artist and the audience. When that art is
attainable by us, it becomes our reality as well. Artists
bridge the gap between self and other when they make art.
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Whether
only a few or a million people hear any recordings released to the
public is not the point. Their reality is enough. As we help to
empower those who might otherwise be marginalized to project their
voices proudly into the world, we not only have the privilege of
assisting them in their heroic personal journey but we also, to
quote music therapy pioneers, Paul Nordoff and Clive Robbins (2005),
give the art of music “a new moral reality in the world.”
References
Aigen,
K. (1991). The voice in the forest: A conception of music for music
therapy. Music Therapy. 10 (1), 77-98.
Aigen, K. (2005). Music-centered music therapy. Gilsum, NH:
Barcelona Press.
Aldridge, D. (2006). Music therapy and neurological
rehabilitation: Performing health. London, UK: Jessica Kingsley
Publishers.
Ansdell, G. (2002). Community music therapy and the winds of change
- a discussion paper. In C. Kenny & B. Stige. (eds.). Contemporary
voices in music therapy: communication, culture and community
(pp. 109 - 143). Oslo, Norway: Unipub Forlag.
Ansdell,G. (2005). Being who you aren’t; Doing what you can’t:
Community music therapy & the paradoxes of performance.
Voices: A world forum for music therapy. 5(3).
Bragg, M. (2007). The last remaining avant-garde movement. Society
Guardian, December 11. www.guardian.co.uk.
Condeluci & McMorrow (2004). Philosophy of rehabilitation. In
Certification exam preparation course. American Academy for the
Certification of Brain Injury Specialists.
Dana Consortium report on arts and cognition (2008). Learning,
arts, and the brain. New York, NY: Dana Press.
Dileo, C. & Bradt, J. (2005). Medical music therapy: A
meta-analysis and agenda for future research. Cherry Hill, NJ:
Jeffrey Books
Gagnon, J & Bouchard, M. et al. (2006). Inhibition and object
relations in borderline personality traits after traumatic brain
injury. Brain Injury. 20 (1): 67-81.
Groch, J. (2008). Music has powers to ease the stroke-injured
brain. www.medpagetoday.com.
Holzman, L. (1999). Performing psychology: A post-modern culture
of the mind. London, UK: Routledge.
Hurt, C., Rice, R., McIntosh, G. & Thaut, M. (1998). Rhythmic
auditory stimulation in gait training for patients with traumatic
brain injury, Journal of music therapy. 35(4), 228-241.
Keenen, G. (2002) Liner notes for Do I Dare? New York, NY:
Gardenia Productions.
Levitin, D. (2006). This is your brain on music: The science of a
human obsession. NY, NY: Penguin Press.
Medical News Today. (2008). Large portion of brain’s prefrontal
region ‘takes 5’ to let creativity flow in jazz improvisation.
February 27. www.medicalnewstoday.com.
Menon & Levitin (2005). The rewards of music listening: Response
and physiological connectivity of the mesolimbic system. NeuroImage
28 (1): 175-184.
Nordoff, P. & Robbins, C. (2005). Therapy in music for
handicapped children (re-issue). Gilsum, NH: Barcelona Press.
Tate & Broe (1999). Psychosocial adjustment after brain injury:
What are the important variables? Psychological Medicine.
Bostyon, MA: Cambridge University Press. 713-725.
Turry, A. (2005). Music psychotherapy and community music therapy:
Questions and considerations. Voices: A World Forum for Music
Therapy. 5 (1).
Weisman, A. (1995). Gaviotas: A villiage to reinvent the world.
White River Junction, VT: Chelsea Green Publishing.
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